Mother forced to sleep on single bed to keep disabled son safe
Every night, little Kaylan Gibson sleeps in a bed that his concerned mom calls a “death trap.”
In the space of just a few months, six-year-old Kaylan, who has a variety of medical conditions, including cerebral palsy, has had a chapped lip and is narrowly left trapped in his adjustable high-low bed, as well as a fall. are. it.
Fearing for her son’s safety, County Durham’s Kelly Thompson feels she has no choice but to share Kylan’s single bed, as Chronicle Live reports, to keep her son safe at night. That’s the only way.
The family claims they were informed by an occupational therapist that things are promising to get Kylan a new specially designed Oasis cot bed with high, padded sides to prevent injuring himself at night. Was looking
However, now Kylie and dad Jordan Gibson’s hopes are shattered when a meeting with social workers concluded that their son would not be provided with a bed.
Kylie, from Pelton, County Durham, said: “I feel betrayed. Frustrated and betrayed. I literally cried throughout the meeting but the response I got was ‘Don’t you think you’re just sleep deprived? I guess That’s all you need to get a good night’s sleep.’
“How do I do that? When you share a bed with a baby who has a lot of needs, you’re afraid to sleep in case you hurt him.”
Kaylan was born 28 weeks premature and had two grade four hemorrhages on the brain, resulting in cerebral palsy. He is unable to walk or manage day-to-day tasks and also struggles with ADHD, as well as being diagnosed with autistic and has sensory overload.
Kaylan also has hydrocephalus — fluid on his brain — as a result of which he needs a shunt to drain the excess fluid. And when Kylan’s shunt became infected earlier this year, he needed brain surgery to fit a new one, and Kylie noticed Kylan’s mobility declined.
By the age of three, Kylan had been sleeping in a safe place, which zipped up, and Kylie says it helped keep Kylan mentally and physically safe, to sleep. However, after leaving the hospital in February after more surgery with a colostomy bag and PEG, Kylan needed a high-low profile bed, as well as a bed that would keep him from falling or injuring himself. Can stop
Kylie, 25, said: “We were stuck and needed a bed ready for Kylan to come out of the hospital, resulting in an adult high profile bed that had already cut off his mouth, head and body. And him, and us as parents too. Being distressed and worried about not having a suitable bed.”
The mum-of-one said that the corners of Kylan’s current bed are too sharp and she was asked to “bubble wrap around the bed” when she picked it up with the family’s occupational therapist.
She continued: “I just said ‘Can you be serious? It’s a safety hazard to suffocate a child’. He then tried to call me and said the only thing we could really do was Well, that was bubble wrap until we found a suitable bed for him, which is not acceptable at all from the ‘professional’ in charge of Kylan’s needs.”
Kylie instead opted to put blankets around the corners of the bed to try to keep Kylan from hurting himself and despite suffering from fibromyalgia, a condition characterized by widespread pain and extreme fatigue throughout the body. The reason is, have continued to sleep in the same bed.
Kylie claims she was told she would not receive an Oasis cot bed because the bed “would be encircling Kaylan” and that it was “against County Durham rights”. However, Kylie and Jordan, 26, believe this would be the perfect bed for Kaylan because of his limited mobility and severely limited vision that makes him unable to get up when he falls from the bed.
Kylie said: “There was no one to support my corner and the three professionals in the meeting didn’t even see the beds Kaylan needed, so I couldn’t even try to sell them. I gave the occupational therapist a read. A list of pros and cons and he didn’t read one of them.
“The two of them hadn’t even met Kaylan before in the meeting. They didn’t know what his mobility or his mental state was like and what other people said, they were just leaving.”
She continued: “My heart sank. I figured we’d just have to get up and fight ourselves for this bed.”
Later that day Kylie and Jordyn, who live nearby and constantly help care for Kylan, set up an online fundraiser on JustGiving and try to raise £8,500 to get Kylan a bed, which they believe. —that she desperately needs and allows her to sleep safely on a bed. our own. Anyone wishing to donate for Bedding for Kaylan can do so through this link.
Sarah Burns, head of integrated commissioning for Durham County Council and County Durham Clinical Commissioning Group, said: “We would like to apologize to Ms Thompson for any inconvenience caused during the visit to her home and can assure her that this was not the intention We are very pleased to speak with both myself and colleagues to resolve this matter as quickly as possible in the best interest of Kaylan.”
A spokesman for the County Durham and Darlington NHS Foundation Trust said: “We are deeply sorry that Kylan’s family is unhappy. Our multi-disciplinary team, which includes a pediatrician, occupational therapist, physiotherapist and social worker, is working to ensure We work closely with families to meet their needs. Our caregivers find the safest and most appropriate equipment to meet their needs. We would welcome the opportunity to discuss the family’s concerns further and they can contact our patient on 0800 783 5774 You can contact the experience team.”
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